Sick baby 'will suffer' if taken to US
- Author: Joanne Flowers Apr 05, 2017,
Apr 05, 2017, 16:57
Doctors at London's Great Ormond Street Hospital said the baby receives 24-hour care and should be allowed to die with dignity.
Doctors say that the boy, who suffers from a rare genetic condition, should move to a palliative care regime.
Connie Yates and Chris Gard disagree and want to take him to the US.
The judge will analyse medical evidence at a hearing in the Family Division.
Miss Yates broke down as a Great Ormond Street specialist gave evidence about Charlie's condition and the judge halted the hearing.
She said the therapy proposed by doctors in the U.S. would "very sadly" not help Charlie. "He is having procedures which would cause pain to other people".
Katie Gollop QC said Charlie could not cry and was deaf.
A specialist in paediatric medicine at Great Ormond Street told the judge that Charlie was "extremely unwell" and likely to be feeling pain.
But the couple, who live in London, believe seven-month Charlie may have a chance of surviving if he receives treatment overseas.
He heard that Charlie, who was born on August 4 2016, had a form of mitochondrial disease - a condition which causes progressive muscle weakness.
Mr Justice Francis has been told Charlie, who was born on August 4 past year, has a form of mitochondrial disease, a condition which causes progressive muscle weakness. But he suggested that treating Charlie would be compassionate.
"Charlie is suffering and that outweighs the small theoretical chance that this may be effective treatment, " she said.
Charlie's parents hope the treatment would fix their baby's faulty mitochondrial DNA and help it synthase again by giving him the naturally occurring compounds that his body isn't able to produce. "To smile. To look at objects", he said.
He said he proposed trying the therapy for up to six months.
"There is no evidence that he is on a regular basis in pain", said barrister Sophia Roper, who is representing Charlie's parents for free.
But his parents want him to have a chance with the nearly $2 million treatment, in the hopes that it could save his life.
They have raised more than £1.2 million through...
Nearly 80,000 people have pledged money and the target has been exceeded.
"The outpouring of support for Charlie and his family is absolutely incredible, " said a GoFundMe spokesman.
The couple stroked a cuddly toy monkey belonging to Charlie as they listened to proceedings on Monday.
"We just want to have our chance".
'After endlessly researching and speaking to doctors all over the world we found hope in a medication that may help him and a Dr in America has accepted him in his hospital. "If it saves him, amazing".
"I want to save others".
She said Charlie's parents (pictured above) thought he could make some movements.